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The Royal College of Psychiatrists Improving the lives of people with mental illness

 

Mental Capacity and the Law

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Who is this leaflet for?

This is for anyone who wants to know more about:

  • capacity
  • the legal protection for people who cannot make decisions for themselves.

It focusses on the 2005 Mental Capacity Act for England and Wales. Scotland has a similar Act called the Adults with Incapacity Act (2008).

Introduction

Every day we make decisions about our health. We decide whether to smoke or not, whether to exercise or not – and what treatments we are prepared to have.

We usually make a decision because it seems to be the right thing for us at that time, “in our own best interest”. Most adults know what is right for them and can make their own decisions. This right is protected by law.

What is capacity?

You have capacity when you can make a decision for yourself without someone else having to decide for you.

If a physical or mental illness affects your thinking so that:

  • you can't  make a decision for yourself
  • you would make a decision that you would not make if you were well.

You would be seen to lack capacity to make that decision.

Can capacity vary?

With the decision to be made ….

Even if your thinking is affected, you may still be able to make simple decisions, but not more complicated ones. If you have dementia and can't remember new information, you may be able to decide about a place you'd like to visit, but may not be able to decide whether to have a hip operation.

With the timing of the decision.....

Capacity can also change with time – because your state of mind can change with time. An illness that interferes with your judgement can get better – at least for a while.  An older person can become confused with a chest infection, but their normal state of mind can return when the infection is treated.

Capacity in healthcare

Normally you can make your own decision about whether to have or not have a treatment. You decide what’s best for you.

You may disagree with your doctor, perhaps for reasons that the doctor will find hard to understand. For example, a Jehovah’s Witness may refuse a blood transfusion because it is against their religion. But, if you have capacity, the doctor has to accept your decision because you have made it in what you see as your best interest.

It is harder when a decision needs to be made and you lack the capacity to make that decision. An infection, a mental illness or dementia may cloud your judgement. The Mental Capacity Act gives guidance about what to do in these situations.

Mental Capacity Act 2005 (MCA)

This Act aims to protect people lacking capacity from having decisions made for them that are not in their best interests. This can happen when:

  1. A decision is made by someone who does not know the person well. For example, a doctor might start a treatment that you would normally refuse.
  2.  A person exploits the patient with impaired capacity.

There are 5 principles:

You are assumed to have capacity.

  • Unless the tests described below show that they do not. 

Your best interests come first.

  • Any decision must be as close as possible to what the person would have normally wanted for him or herself.

Help to make a decision.

  • As far as possible, you should be helped to make the decision yoursefl. A decision can be postponed or family members can support you while you consider the decision.

Freedom to make unwise decisions.

  • If you have the capacity to make a particular decision, you have the right to make a decision that others might see as unwise.

Least restrictive action.

  • The decision made should be the least disturbing and least dangerous.

How is capacity tested?

1)    Do you understand the information?

To make a decision about a treatment, you need to understand the relevant information - the risks and benefits of the treatment, any other treatments available and the likely result of not having any treatment.

2)    Can you retain this information?

If you seem to understand the relevant information, but cannot remember it for more than a few seconds or minutes, you are unlikely to be able to use it to make an informed decision.

3)    Can you weigh up the information?

Can you compare the benefits and risks and use this to make your decision? You may be able to understand the information (test 1), remember it (test 2), but not be able to weigh facts as you would normally. A person with psychosis may be influenced or distracted by hearing voices. A person with severe depression may feel so hopeless that any treatment seems pointless, even though there is a good chance of recovery.

4)    Can you communicate your decision?

You can do this by talking, writing, in sign language, by nodding or even blinking an eyelid.

The answer must be yes to all four of the above questions for you to be judged to have capacity.

Who measures capacity?

By using these four questions, any professional can test capacity. This should be the person most directly involved with the issue at hand. For health decisions, the doctor should test for capacity. If a will needs to be drawn up, and the lawyer has doubts about someone's capacity,they may ask an expert, such as a psychiatrist or a psychologist, to help them.

Safeguards

  • A doctor who wants to treat you under the MCA must contact your family (or close friends/care workers if there is no family) to find out what you would normally want.
  • The Court of Protection oversees all matters relating to capacity.
  • You can give someone the power to make decisions for you if you lose capacity in the future. This is called Lasting Power of Attorney (LPA). You have to do this when you still have capacity.
  • You can make an “Advanced Directive”, a decision in advance to refuse certain treatments if you lose capacity in the future. Again, you can only do this when you still have capacity. This can be useful both with disorders that get better and worse, like schizophrenia, or with disorders that just get worse, such as dementia.
  • If you have no family or close friends to speak for you, an Independent Mental Capacity Advocate (IMCA) can help you.

What happens next?

The Mental Capacity Act gives doctors and nurses the power to treat somebody against their will if that person does not have the capacity to decide about treatment.  Even when necessary, it can be upsetting for the person and their family, so it is not done lightly.

Mental Illness and the Mental Health Act (MHA)

For mental illnesses, the Mental Health Act is used instead. This allows for compulsory treatment even if a person is judged still to have capacity, but they are judged to be a risk to their own or others’ safety, or so ill that they need the treatment.

Concerns

If you:

  • are worried about your capacity
  • are worried about the capacity of a friend or relative
  • feel you are being pressurized into a treatment you don’t really want.

discuss this with your doctor or any member of the team.

If you still aren't happy, you can contact the following organisations.

Further information

Alzheimer's Society

UK care and research charity for people with this disease and other dementias, their families and carers.

Mencap

National charity to support people with learning disability.

MIND: Infoline: 0300 123 3393.

Mental health charity with information on capacity issues.

Northern Ireland: In Northern Ireland, The Mental Capacity (Health, Welfare & Finance) Bill is under discussion,  and it is hoped will be enacted in 2013/14.

Authors: Dr Sohom Das and Dr Michael Yousif

Series Editor: Dr Philip Timms

User and Carer input: members of the RCPsych Service User Recovery Forum and Carers Forum.

For a catalogue of public education materials or copies of our leaflets please contact:RCPsych logo

 

Leaflets Department
The Royal College of Psychiatrists,
17 Belgrave Square, London SW1X 8PG. Tel:  020 7235 2351 x 6259

Charity registration number (England and Wales) 228636 and in Scotland SC038369.

© February 2012. Due for review: February 2014.

Royal College of Psychiatrists. This leaflet may be downloaded, printed out, photocopied and distributed free of charge as long as the Royal College of Psychiatrists is properly credited and no profit gained from its use. Permission to reproduce it in any other way must be obtained from the Head of Publications. The College does not allow reposting of its leaflets on other sites, but allows them to be linked directly.

Please note that we are unable to offer advice on individual cases. Please see our FAQ for advice on getting help.

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